Wow what a day it has been!! To say that I have been nervous about what today might hold would be an understatement but I have been working so hard to rest in the knowing that God was walking next to us every step of the way.
So, most of you know that our last neurosurgery appointment (3 months ago) was a little bit scary. It was the first appointment that they were not singing Easton's praises but instead were a little concerned and started talking about the very real possibility of our little man needing a shunt. The appointment ends and they send this momma (and daddy too) on her way to do her best to not worry herself sick for the next three months.
I have felt this little guys soft spot so often over the last 3 months that I'm surprised he doesn't have a bald spot!!
Since that last appointment it has been amazing the number of times that God has reminded me that he is walking this journey along with us. I talked about the pediatrician in the last blog - how she shared about how the sermon at her church the week previous had been about the walls of Jericho - How they didn't know what was going to happen but were trusting with blind faith that God had a plan - and He delivered...BIG TIME....when the walls came crashing down!
As the time got closer, verses seemed to show up with neon lights around them on Facebook and Pinterest.
It is the Lord who goes before you. He will be with you; He will not leave you or forsake you. Do not fear or be dismayed. Deuteronomy 31:8
Peace I leave with you; My peace I give to you. Not as the world gives do I give it to you. Let not your hearts be troubled, neither let them be afraid. John 14: 27
Then there was the sermon at my own church where my pastor said time and time again.....Lord, our ways are not your ways.
Again and again and again....Often in the most unexpected places!!
The one that sticks out the most though is when I went down to a Beth Moore Live event in Daytona a few weeks back. A good friend and I had booked the trip months ago - and had been looking forward to it for just as long!! I remember on the first evening Beth saying that she had been fervently praying that the Lord would provide every woman in the room a "Word and a Wonder." She talked about how she wanted every one of us to walk away with a word or a verse that spoke directly to us and even more than that, she was asking the Lord to reveal to every single woman in the room a wonder in their life - a reason to believe that God is still in the business of miracles.
There I sat - amongst thousands of women - thinking about what my wonder could be and immediately praying that maybe my wonder would be revealed not that weekend but a few weeks later, in December, at Easton's next neurosurgery appt.......
Since then I have clung to that hope....Prayed that today would be the day that God would show me, in a very real way that he is still in the miracle business.....
Well let me tell you what - God didn't let us down!! I got my wonder!! Praise the Lord!!
Easton had another head ultrasound today (these are getting harder and harder - little man isn't really into laying still any more....) and then headed upstairs for our appointment with Dr. Beier - the neurosurgeon. Now, I must be honest, I had prepared myself for the worst - I was ready to talk about surgery dates but at the same time was praying for good news.
Here's what we found out:
-We were worried about his head size. He's got a HUGE noggin (I think it's just the huge brain that my genius has!!) At his last pediatrician appointment they couldn't even give me a percentile because his head was literally not on the curve.....
Dr. Beier's response - His head isn't THAT big! I had a little girl in here yesterday who's head is so big mom has to cut her shirts to get them over her head!! He is only one standard deviation above the curve, that's nothing!! She also commented that if you "hallucinate" (I'm not kidding...that is the word she used) :) you can see that his head growth is curving - he is just making his own curve. She continued with "so....he's got a big head! I'm much more concerned about his ventricles....."
-We were worried that his soft spot was feeling a little "full" at his last appointment. A baby's soft spot is supposed to be sunken - and they were a little concerned about how if felt last time (hense the petting this poor boys head until he's got a bald spot there)
Dr. Beier's response - His head feels great - feels absoluely normal - just like it should!!
-Most of all we were concerned about his ventricle size. Though they have not been growing by leaps and bounds, they have been growing a little each time. Dr. Beier said this is the biggest change that we watch...she said that our goal is no change in ventricle size which would indicate that things are leveling out. At our last appointment she said that the goal is to go 6 months with no ventricle size change then we get to lengthen our neurosurgery leash a little
Dr. Beier's response today - THERE WAS NO CHANGE IN HIS VENTRICLE SIZE!!!
let me just say that one more time because I am still having trouble grasping it myself.....
THERE WAS NO CHANGE IN HIS VENTRICLE SIZE!!!!
The radiologist who read the ultrasoud said that the ventricles were slightly enlarged but stable with no significant change as compared to the previous scan!!
Ladies and gentleman....not only were we not talking surgery dates today - we were talking about how AWESOME Easton is doing, about how she is NOT CONCERNED and feels that he LOOKS AWESOME!!
When I asked if that makes today the first appointment on our way to 6 months....she smiled and said....."Well, his head size increased some but we will see how things look at your next appointment"
So - this was by far our best neurosurgey appointment yet - I got my wonder :) God is right here still working miracles - His name is Easton, my boy with a giant noggin, a smile that will melt your heart and enough drool to fill an olympic size pool!
That was my day - Bet mine was better than yours!! :)
We go back in 3 months for another scan....so for now, we go enjoy Christmas - with our boy who has STABLE ventricles :)
Thank you all so much for the prayers - they were felt for sure! Thank you so much to my amazing co-workers who litterally cheered when I walked in the door today - love knowing that you all love him and are rooting for him like he was your own!! Thank you Beth Moore for challenging me to look for my wonder. And most importantly, thank you Lord for using Easton to bring You glory and for letting me be a part of his story along with him :) Only 7 months and oh how he has changed this momma's life!!
GOD IS GOOD - ALL THE TIME!!
Love and Hugs
The Diehls
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AuthorI'm Kristin - Wife to Stephen, mommy to 3 crazy boys, pediatric physical therapist.... Archives
January 2016
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