We had an appointment with urology Tuesday morning for a urodynamics test - now, I am totally out of my element with stuff like urology so, as best as I can understand, it checks his bladder pressures which are important to keep the kidneys safe. The test was yesterady and the follow up with the doctor was this morning. The doctor today said that based on test results they are not concerned about anything at this time. He said that his bladder is a little hyperreflexive (contrats more often than it really should) which down the line can be addresed with medication but also said this may change as he gets older. So essentially the jist of the appointment was, for now...everything is great! We are scheduled to go back for a repeat kidney ultrasound in about 3 months (he had one when he was in the NICU) and then will repeat both the kidney ultrasound and the urodynamics testing around his first birthday.
Relatively good news.....
I of course love to share good news, but I am actually writing today to ask for some extra prayers....
I came up with a great plan on Tuesday afternoon. I decided I would call the neurosurgeon about Easton's head circumfrence. (It measured big on Monday at the pediatrician - who told me not to worry about it - yeah right - and come back in a week for a remeasure) Well...on to my great plan....I was just SURE that I called neurosurgery, told them the measurement the pediatrician got and they would be able to compare it to the measure that was taken just a month ago at his appointment when everything looked great and reassure me that everything was totally fine! Well....that's not exactly how the conversation went.....
It was more of a "yeah, that's a significant change according to our records as well. We are going to go ahead and bring you in."
So, instead of a reassuring phone call I ended up with an appointment for a repeat head ultrasound and appointment with the neurogurgeon on Thursday :(
I keep telling myself that I would rather the doctors be over cautious than not enough so and keep trying to reassure myself that he probably just has his daddy's big head....I mean big brain!!
So for those of you I have totally confused.....Let me explain....
Remember way back when I was still pregnant and we were looking at his ventricles every week to make sure they weren't increasing in size?? And so it continues....only now they do the ultrasounds on his head instead of my belly!! The ventricles are reservoirs in the brain that hold fluid (everyone has fluid). The problem occurs when they aren't working right the fluid can build up which can then in turn make the child's head grow....and could eventually increase the pressure in his head.....(not good.....)
I have checked this poor boys soft spot 400 times since Monday (it is still nice and soft and concave - like it should be - which indicates that he doesn't actually have an increase in pressure)
Outwardly he doesn't show any signs that something is not right....
So prayers please that he just has a big head because God gave him a big head and not because the ventricles are not doing their job :(
This sure isn't how I wanted to spend my last week at home with this guy but I guess better this week then next week....would hate to be having the conversation with my supervisor, who has been so amazingly understanding through all of this, that I need time off for doctors appointments my first week back :/
So, back to Wolfson we go tomorrow for our 4th appointment this week.
No rest for the weary either...literally in the parking lot of the doctors office today I made the poor boy an appointment with the orthotist for Friday afternoon to figure out a plan for the hip brace. (More on that later when I know more) So that makes an appointment every day this week........So much for all those last minute things I was hoping to get done around the house before returning to the real world on Monday!
Thank you for the prayers! We should know something tomorrow afternoon.......